Another long day…emotionally long.
We went back and forth between the hospital and Ronald McDonald house today. Olivia just couldn’t endure sitting in waiting rooms between appointments. She was tired today. She was quiet. She was down. It is hard to watch her withdraw and not want to talk or interact with anyone because she’s such a social person. She sat quietly beside me all day or walked slightly behind me holding my hand, head down.
- Ophthalmologist appointment went ok. The watering/tearing is due to her eyelid not fully closing when she blinks. They believe that the reason her eyelid not closing is due to swelling because of radiation. Should the swelling go down and her eyelid continue to not fully close, that would lead to an eyelid surgery. We will continue to monitor and will see ophthalmologist again next week.
- Physical therapy went great. A side effects of one of her chemotherapy medicines is muscle weakness. PT was not concerned with their assessment of her today but gave her some strengthening exercises to do at home.
- Radiation was uneventful
- Booster shot sucked. This is her day 9 shot to elevate her white blood count. Full fledge meltdown that included screaming. The shot/needle doesn’t hurt, it’s the medicine. The medicine burns as it’s injected and that’s what bothers her.
Tomorrow should be an easy day…fingers crossed. We have radiology consult with our radiology oncologist and radiation.
Radiation 20/28 completed
Chemotherapy 17/66 completed
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