Today was long.
- We were at the hospital from 8:30 until 7:30.
- Chemo done.
- Blood transfusion done.
- Port deaccessing went as good as expected.
- We are back at the RMH.
- She didn’t feel much like eating.
- Her blood pressure is a bit high. Not overly concerned right now but something we will need to watch.
- Her legs are bothering her, almost like restless leg syndrome…but enhanced. Her legs literally shiver and shake all night now. We are meeting with physical therapist tomorrow. She hates when we have to walk long distances.
- Her right eye is alway watering A LOT, almost excessively so we are meeting with her St. Jude ophthalmologist tomorrow as well.
- Tomorrow will be another busy day. I fully expect a well deserved meltdown by 4 pm.
- We talked a lot when we got settled in this evening. We talked a lot about God and Jesus. We talked about being home. We laughed. We cried. It always feels good to talk openly with her. She understands what’s going on. I told her that my prayers every night is for Him to give me her cancer so she wouldn’t have to go through what she is going through. She told me with such maturity that He gave it to her for a reason. This child impresses me Every. Single. Day.
#Oliviastrong
First posted on the OliviaStrong Facebook page.