Most of the time, this is how I watch Olivia while we are in the hospital after our day is done. She’s usually on her computer/tablet/phone or sleeping. I’m wrapped in a blanket (my favorite from home), watching her do whatever she is doing from the hospital couch/bed.
If she’s awake, every so often she will look over and tell me she loves me, raise her eyebrows or blow me a kiss. I love and cherish those moments. Other times, she’s ignoring me, engrossed in her own activity.
When she is sleeping, I watch her. I listen to her. I hear every sounds she makes. Sometimes I get up and stand over her just staring and watching her sleep peacefully.
I’ve mentioned our days are a roller coaster ride of emotions. There are many highs and lows, tears, laughter, anger and frustration. This is my time of solace.
First posted on the OliviaStrong Facebook page.